Reflections of nursing students on the care of the person's dignity at the end of life: A qualitative study.

BACKGROUND: The education of nursing students not only implies transmitting knowledge and clinical skills, but also values, attitudes, and behaviours. In healthcare, it is considered essential to respect and preserve the dignity of people. This is even more important in palliative care, where the fragility of people makes them potentially vulnerable. There is limited knowledge regarding the conceptualization and experience of nursing students and human dignity in palliative care. AIM: To describe how 5th-year nursing students conceptualise and experience human dignity, while caring for people with terminal illness. DESIGN: Qualitative descriptive design, with thematic content analysis as per Graneheim and Lundman. SETTING: A palliative care centre for people on low incomes with terminal illnesses which no longer respond to curative treatments. PARTICIPANTS: A total of 11 fifth-year nursing students who completed their professional practice in a palliative care unit. METHODS: Data collection was conducted through guided online reflections via reflective journaling between April and November 2020. The study protocol was reviewed and approved by the Scientific Ethical Committee within the educational institution (CEC2021065). RESULTS: Four thematic categories were identified (1) Concept of dignity; (2) Dignity: an essential element in the relationship with others, (3) Instances when the dignity of the person is not considered; (4) The value of reflection on dignity in clinical practice. CONCLUSION: Dignity is one of the main values recognized in the person. Dignity should be promoted in the education of future nursing professionals, particularly with people who are in the final stage of life, where fragility and vulnerability it is more palpable.

Spiritual well-being, symptoms and performance of patients under palliative care.

OBJECTIVES: to assess the relationship between spiritual well-being, symptoms and performance of patients under palliative care. METHODS: this is a descriptive correlational study, conducted with 135 patients seen in palliative care outpatient clinics. Karnofsky Performance Status Scale, Edmonton Symptom Assessment Scale, Spirituality Scale and Hospital Anxiety and Depression Scale were used. Data were submitted to descriptive statistical analysis and Spearman's correlation. RESULTS: among participants, 68.2% were cancer patients. The most prevalent symptoms were changes in well-being (65.2%), anxiety (63.7%), sadness (63%) and fatigue (63%). Sadness, dyspnea, sleepiness, anxiety and depression presented weak to moderate correlation with spiritual well-being. Symptom overload showed weak negative correlation with performance. CONCLUSIONS: symptom intensification was correlated with worsening in spiritual well-being perception. The reduction in performance was related to increased number of symptoms, especially depression and anxiety.

Spiritual well-being, symptoms and performance of patients under palliative care / Bienestar espiritual, síntomas y funcionalidad de pacientes en cuidados paliativos / Bem-estar espiritual, sintomas e funcionalidade de pacientes em cuidados paliativos

ABSTRACT Objectives: to assess the relationship between spiritual well-being, symptoms and performance of patients under palliative care. Methods: this is a descriptive correlational study, conducted with 135 patients seen in palliative care outpatient clinics. Karnofsky Performance Status Scale, Edmonton Symptom Assessment Scale, Spirituality Scale and Hospital Anxiety and Depression Scale were used. Data were submitted to descriptive statistical analysis and Spearman's correlation. Results: among participants, 68.2% were cancer patients. The most prevalent symptoms were changes in well-being (65.2%), anxiety (63.7%), sadness (63%) and fatigue (63%). Sadness, dyspnea, sleepiness, anxiety and depression presented weak to moderate correlation with spiritual well-being. Symptom overload showed weak negative correlation with performance. Conclusions: symptom intensification was correlated with worsening in spiritual well-being perception. The reduction in performance was related to increased number of symptoms, especially depression and anxiety.

RESUMEN Objetivos: evaluar la relación entre bienestar espiritual, síntomas y funcionalidad de pacientes en cuidados paliativos. Métodos: estudio descriptivo correlacional, realizado con 135 pacientes atendidos en consultas externas de cuidados paliativos. Se utilizaron la Escala Funcional de Karnofsky, la Escala de Evaluación de Síntomas de Edmonton, la Escala de Espiritualidad y la Escala de Ansiedad y Depresión Hospitalaria. Los datos fueron sometidos a análisis estadístico descriptivo y correlación de Spearman. Resultados: entre los participantes, 68,2% eran pacientes con cáncer. Los síntomas más prevalentes fueron cambios en el bienestar (65,2%), ansiedad (63,7%), tristeza (63%) y fatiga (63%). Tristeza, disnea, somnolencia, ansiedad y depresión mostraron una correlación débil a moderada con el bienestar espiritual. La carga de síntomas mostró una débil correlación negativa con la funcionalidad. Conclusiones: la intensificación de los síntomas se correlacionó con el empeoramiento de la percepción de bienestar espiritual. La reducción de la funcionalidad se relacionó con un aumento del número de síntomas, especialmente depresión y ansiedad.

RESUMO Objetivos: avaliar a relação entre bem-estar espiritual, sintomas e funcionalidade de pacientes em cuidados paliativos. Métodos: estudo descritivo correlacional, realizado com 135 pacientes atendidos em ambulatórios de cuidados paliativos. A Escala Funcional de Karnofsky, a Escala de Avaliação de Sintomas de Edmonton, a Escala de Espiritualidade e a Escala Hospitalar de Ansiedade e Depressão foram utilizadas. Os dados foram submetidos à análise estatística descritiva e correlação de Spearman. Resultados: entre os participantes, 68,2% eram pacientes oncológicos. Os sintomas mais prevalentes foram alterações do bem-estar (65,2%), ansiedade (63,7%), tristeza (63%) e fadiga (63%). Tristeza, dispneia, sonolência, ansiedade e depressão apresentaram correlação fraca a moderada com bem-estar espiritual. A sobrecarga de sintomas mostrou correlação negativa fraca com funcionalidade. Conclusões: a intensificação dos sintomas esteve correlacionada à piora na percepção de bem-estar espiritual. A redução da funcionalidade esteve relacionada ao aumento da quantidade de sintomas, em especial depressão e ansiedade.

Spiritual well-being, symptoms and performance of patients under palliative care / Bienestar espiritual, síntomas y funcionalidad de pacientes en cuidados paliativos / Bem-estar espiritual, sintomas e funcionalidade de pacientes em cuidados paliativos

ABSTRACT Objectives: to assess the relationship between spiritual well-being, symptoms and performance of patients under palliative care. Methods: this is a descriptive correlational study, conducted with 135 patients seen in palliative care outpatient clinics. Karnofsky Performance Status Scale, Edmonton Symptom Assessment Scale, Spirituality Scale and Hospital Anxiety and Depression Scale were used. Data were submitted to descriptive statistical analysis and Spearman's correlation. Results: among participants, 68.2% were cancer patients. The most prevalent symptoms were changes in well-being (65.2%), anxiety (63.7%), sadness (63%) and fatigue (63%). Sadness, dyspnea, sleepiness, anxiety and depression presented weak to moderate correlation with spiritual well-being. Symptom overload showed weak negative correlation with performance. Conclusions: symptom intensification was correlated with worsening in spiritual well-being perception. The reduction in performance was related to increased number of symptoms, especially depression and anxiety.

RESUMEN Objetivos: evaluar la relación entre bienestar espiritual, síntomas y funcionalidad de pacientes en cuidados paliativos. Métodos: estudio descriptivo correlacional, realizado con 135 pacientes atendidos en consultas externas de cuidados paliativos. Se utilizaron la Escala Funcional de Karnofsky, la Escala de Evaluación de Síntomas de Edmonton, la Escala de Espiritualidad y la Escala de Ansiedad y Depresión Hospitalaria. Los datos fueron sometidos a análisis estadístico descriptivo y correlación de Spearman. Resultados: entre los participantes, 68,2% eran pacientes con cáncer. Los síntomas más prevalentes fueron cambios en el bienestar (65,2%), ansiedad (63,7%), tristeza (63%) y fatiga (63%). Tristeza, disnea, somnolencia, ansiedad y depresión mostraron una correlación débil a moderada con el bienestar espiritual. La carga de síntomas mostró una débil correlación negativa con la funcionalidad. Conclusiones: la intensificación de los síntomas se correlacionó con el empeoramiento de la percepción de bienestar espiritual. La reducción de la funcionalidad se relacionó con un aumento del número de síntomas, especialmente depresión y ansiedad.

RESUMO Objetivos: avaliar a relação entre bem-estar espiritual, sintomas e funcionalidade de pacientes em cuidados paliativos. Métodos: estudo descritivo correlacional, realizado com 135 pacientes atendidos em ambulatórios de cuidados paliativos. A Escala Funcional de Karnofsky, a Escala de Avaliação de Sintomas de Edmonton, a Escala de Espiritualidade e a Escala Hospitalar de Ansiedade e Depressão foram utilizadas. Os dados foram submetidos à análise estatística descritiva e correlação de Spearman. Resultados: entre os participantes, 68,2% eram pacientes oncológicos. Os sintomas mais prevalentes foram alterações do bem-estar (65,2%), ansiedade (63,7%), tristeza (63%) e fadiga (63%). Tristeza, dispneia, sonolência, ansiedade e depressão apresentaram correlação fraca a moderada com bem-estar espiritual. A sobrecarga de sintomas mostrou correlação negativa fraca com funcionalidade. Conclusões: a intensificação dos sintomas esteve correlacionada à piora na percepção de bem-estar espiritual. A redução da funcionalidade esteve relacionada ao aumento da quantidade de sintomas, em especial depressão e ansiedade.

Nursing students experience during the COVID-19 pandemic: a qualitative research.

OBJECTIVES: To describe the professional practice experiences of fifth year nursing students during the COVID-19 pandemic. METHODS: Qualitative research design with content analysis. Participant sampling was purposive. 13 fifth-year nursing students participated. All of them completed their professional clinical practice in public hospitals and private clinics who cared for COVID-19 patients in Chile. The data were obtained through guided online written self-reflections. RESULTS: Three main themes were inductively identified: (1) Facing with a very difficult and stressful situation, due to the permanent use of personal protection elements, multiple emotions, and physical fatigue, as well as facing ethical-clinical dilemmas in daily tasks; (2) Recognising different coping styles in difficult moments, highlighting contact with significant people and combination form of support and harmful ways of coping with stress; and (3) Experiences disciplinary learning and personal growth, such as: nursing care management, interpersonal skills in times of crisis and having contributed to the country in this adverse context. CONCLUSIONS: The clinical experience of the students in times of COVID-19, was an opportunity to learn how to perform nursing care in times of crisis, humanize care and support health teams in some of the country's hospitals.

Nursing students experience during the COVID-19 pandemic: a qualitative research / Experiencia de los estudiantes de enfermería durante la pandemia de covid-19: una investigación cualitativa / Vivência de estudantes de enfermagem durante a pandemia de covid-19: uma pesquisa qualitativa

Objective. To describe the professional practice experiences of fifth year nursing students during the COVID-19 pandemic. Methods. Qualitative research design with content analysis. Participant sampling was purposive. 13 fifth-year nursing students participated. All of them completed their professional clinical practice in public hospitals and private clinics who cared for COVID-19 patients in Chile. The data were obtained through guided online written self-reflections. Results. Three main themes were inductively identified: (1) Facing with a very difficult and stressful situation, due to the permanent use of personal protection elements, multiple emotions, and physical fatigue, as well as facing ethical-clinical dilemmas in daily tasks; (2) Recognising different coping styles in difficult moments, highlighting contact with significant people and combination form of support and harmful ways of coping with stress; and (3) Experiences disciplinary learning and personal growth, such as: nursing care management, interpersonal skills in times of crisis and having contributed to the country in this adverse context. Conclusion. The clinical experience of the students in times of COVID-19, was an opportunity to learn how to perform nursing care in times of crisis, humanize care and support health teams in some of the country's hospitals.

Objetivo. Describir las experiencias de la práctica profesional de los estudiantes de quinto año de enfermería durante la pandemia de COVID-19. Métodos. Diseño de investigación cualitativa con análisis de contenido. El muestreo de participantes fue intencional. Participaron 13 estudiantes de quinto año de enfermería. Todos ellos realizaron su práctica clínica profesional en hospitales públicos y clínicas privadas atendiendo a pacientes con COVID-19 en Chile. Resultados. Se identificaron inductivamente tres temas principales: (1) Enfrentarse a una situación muy difícil y estresante, debido al uso permanente de elementos de protección personal, a las múltiples emociones y al cansancio físico, así como a dilemas ético-clínicos en las tareas diarias; (2) Reconocimiento de los diferentes estilos de afrontamiento en momentos difíciles, destacando el contacto con personas significativas, y la combinación de formas de apoyo y formas perjudiciales de afrontar el estrés; y (3) Experiencias de aprendizajes disciplinares y de crecimiento personal, tales como: gestión de cuidados de enfermería, habilidades interpersonales en momentos de crisis y haber contribuido al país en este contexto adverso. Conclusión. La experiencia clínica de los estudiantes en tiempos del COVID-19 fue una oportunidad para aprender a realizar cuidados de enfermería en tiempos de crisis, humanizar la atención y apoyar a los equipos de salud en algunos hospitales del país.

Objetivo. Descrever as experiências de prática profissional de estudantes de enfermagem do quinto ano durante a pandemia de COVID-19. Métodos. Desenho de pesquisa qualitativa com análise de conteúdo. A amostragem dos participantes foi intencional. Participaram 13 estudantes de enfermagem do quinto ano. Todos eles realizaram seu estágio clínico profissional em hospitais públicos e clínicas privadas atendendo pacientes com COVID-19 no Chile. Resultados. Três temas principais foram identificados indutivamente: (1) Enfrentar uma situação muito difícil e estressante, devido ao uso permanente de elementos de proteção individual, emoções múltiplas e cansaço físico, bem como enfrentar dilemas ético-clínicos nas tarefas diárias; (2) Reconhecimento dos diferentes estilos de enfrentamento em momentos difíceis, destacando o contato com pessoas significativas, e a combinação de formas solidárias e prejudiciais de enfrentamento do estresse; e (3) Experiências de aprendizagem disciplinar e crescimento pessoal, tais como: gestão do cuidado de enfermagem, habilidades interpessoais em tempos de crise e ter contribuído para o país neste contexto adverso. Conclusão. A experiência clínica dos alunos em tempos de COVID-19 foi uma oportunidade para aprender a realizar a assistência de enfermagem em tempos de crise, humanizar o atendimento e apoiar as equipes de saúde em alguns hospitais do país.

Understanding the experience of nursing students' internship at a palliative care unit: A phenomenological research study.

BACKGROUND: Palliative care is characterised as a holistic, interdisciplinary and humanised approach to care. It transcends the traditional bio-medical perspective in health through a bio-psycho-social and spiritual approach. Holistic point of view in palliative care is essential, and needs to be consistently hi-lighted to nursing students to improve end of life care. OBJECTIVE: To describe nursing students' experience in a palliative care unit in Santiago, Chile. DESIGN: A qualitative phenomenological study utilising purposive sampling of 10 nursing students from a Chilean university was undertaken, who completed their final year in a palliative care unit between 2017 and 2019. METHODS: Data were collected using in-depth interviews, which were conducted, recorded, transcribed and analysed according to Streubert-Carpenter method. This study was approved by the Ethics Committee of Universidad de los Andes, Chile. RESULTS: Three main themes were identified in the data with their consequent units of meaning; these were experiences from all participants. The first theme identified was the diverse learning experiences students had. Topics included were: spirituality, dignity, teamworking and communication with the patient and family. They also identified personal growth. The second theme was living through the experience of difficult times; this included how they dealt facing death and how they found meaning on this. Also, patient loneliness, abandonment and the impact of shortage of human and material resources. The final theme was recognising that touching patients is often the essence of nursing and is paramount in palliative care. CONCLUSIONS: Completing a placement in a palliative care unit contributes to student nurses' personal and professional development. It provides multiple tools related to the care of terminally-ill patients and their families. It is recommended to undergraduate nurses have the opportunity to experience palliative care throughout curriculum and that they learn to embed theory to practice.

Reflective Learning of Palliative Care by Secondary Healthcare and Sociosanitary Students Using Two Videoclips on the Experience of Cameron Duncan: "DFK6498" and "Strike Zone".

Educating young people about how to interact with patients at the end of their lives is challenging. A qualitative study based on Husserl's phenomenological approach was performed to describe the learning experience of secondary education students after watching, analysing, and reflecting on two videoclips featuring Cameron Duncan, a young man suffering from terminal cancer (DFK6498 and Strike Zone). Students from three vocational centres providing training in ancillary nursing, pharmacy, and dependent care in the Community of Madrid visited the Palliative Care (PC) Hospital. A total of 110 students (102 female and 8 male), with a median age of nineteen years, participated in the study. The students' learning experience through the videoclips reveals the essential aspects required in palliative care, since the character suffers in every dimension of his being: physically as well as psychologically, socially, and spiritually. Therefore, this requires healthcare professionals to understand their experience, putting themselves in their place, to provide affectionate care and to display communication skills leading to a quality helping relationship. Four comprehensive educational categories were identified in the study. The students learned the importance of: 1) providing comprehensive and affectionate care to patients, 2) the need for communication skills in caring for patients, 3) being aware of the end of life and time left, 4) valuing life and fighting for what one wishes to attain. A visit to a PC hospital and the viewing of videoclips and reflection upon these, represents a useful strategy for secondary education healthcare students. The study indicates that videoclips are an innovative method for becoming aware of the various issues pertaining to palliative care.

Cuidados al paciente y su familia al final de la vida: la anticipación compasiva / Care for the patient and his family at the end of life: compassionate advance care planning

El final de la vida va acompañado de sufrimiento y penalidades que pueden ser aliviados en las unidades de Cuidados Paliativos (CP) con una atención compasiva. El objetivo de este trabajo consiste en describir el concepto de "anticipación compasiva" como una forma de cuidar al paciente y a su familia al final de la vida desde la perspectiva tanto de los profesionales, profesores y estudiantes de las ciencias de la salud, como de las personas con enfermedad avanzada y sus familiares. Se ha empleado para ello una metodología cualitativa. Los datos se recogieron a través de entrevistas en profundidad y de grupos focales, siendo analizados y codificados usando la técnica de la teoría fundamentada. Se obtuvo la aprobación de un Comité de Ética. La muestra intencionada fue de 29 participantes: pacientes y familiares de pacientes con enfermedad avanzada, profesionales asistenciales de CP y expertos en bioética, profesores universitarios y estudiantes de Ciencias de la Salud. Los datos se recogieron en un Hospital de CP en Madrid, España. Los participantes valoran positivamente la anticipación compasiva de los profesionales que supone estudiar y reflexionar sobre las posibles complicaciones que pueden derivarse de la situación de enfermedad avanzada que padece el enfermo y dialogar con él acerca de las posibles actuaciones al respecto. El artículo concluye que la compasión es una virtud que implica adelantarse a las necesidades de los pacientes para que el enfermo pueda tomar decisiones compartidas acertadas. Es lo que se denomina anticipación compasiva. Son necesarios ulteriores estudios que profundicen en las características de la anticipación compasiva y cómo desarrollarla de forma óptima en los pacientes al final de la vida

End of life is frequently accompanied by suffering and hardships that can be alleviated in the Palliative Care (PC) units by applying compassionate advance care. It is the aim of this paper to describe the concept of "compassionate advance care" as a way of caring for the patient and his family at the end of life from the perspective of both professionals, teachers and students of the health sciences, and persons with advanced disease and their families. A qualitative methodology was used. Data were collected through in-depth interviews and focus groups, and analysed and coded using the theory of Grounded Theory. Approval of an Ethics Committee was obtained. The intentional sample consisted of 29 participants, who were patients and relatives of patients with advanced disease, PC professionals and experts in bioethics, university professors and Health Sciences students. Data were collected in a PC Hospital in Madrid, Spain. The participants positively valued the compassionate advance care provided by professionals: analysing and reflecting on possible complications that may arise from the advanced disease situation suffered by the patient and establishing a dialogue with him about possible actions in this regard. The paper concludes that compassion is a virtue that implies anticipating the needs of patients, thus allowing the patient to make the right shared decisions. This is what the term Compassionate Advance Care Planning entails. Further studies are needed to delve into the characteristics of compassionate Advance Care Planning and how to optimally implement it in patients at the end of life. To admit the opposite is to enter a spiral where the dignity of the human being would become an object of weighting with respect to another value, which, in a hypothetical conflict could be postponed by another. However, Palliative Care takes into account the social dimension of the end of life of the human being. They take care of the sick human being in its entirety. That is why they are the option most in line with the dignity of the human being at the end of his life

[Care for the Patient and his Family at the end of Life: Compassionate Advance Care Planning]. / Cuidados al Paciente y su Familia al Final de la Vida: La Anticipación Compasiva.

End of life is frequently accompanied by suffering and hardships that can be alleviated in the Palliative Care (PC) units by applying compassionate advance care. It is the aim of this paper to describe the concept of "compassionate advance care" as a way of caring for the patient and his family at the end of life from the perspective of both professionals, teachers and students of the health sciences, and persons with advanced disease and their families. A qualitative methodology was used. Data were collected through in-depth interviews and focus groups, and analysed and coded using the theory of Grounded Theory. Approval of an Ethics Committee was obtained. The intentional sample consisted of 29 participants, who were patients and relatives of patients with advanced disease, PC professionals and experts in bioethics, university professors and Health Sciences students. Data were collected in a PC Hospital in Madrid, Spain. The participants positively valued the compassionate advance care provided by professionals: analysing and reflecting on possible complications that may arise from the advanced disease situation suffered by the patient and establishing a dialogue with him about possible actions in this regard. The paper concludes that compassion is a virtue that implies anticipating the needs of patients, thus allowing the patient to make the right shared decisions. This is what the term Compassionate Advance Care Planning entails. Further studies are needed to delve into the characteristics of compassionate Advance Care Planning and how to optimally implement it in patients at the end of life. To admit the opposite is to enter a spiral where the dignity of the human being would become an object of weighting with respect to another value, which, in a hypothetical conflict could be postponed by another. However, Palliative Care takes into account the social dimension of the end of life of the human being. They take care of the sick human being in its entirety. That is why they are the option most in line with the dignity of the human being at the end of his life.

Vivir con cáncer: una experiencia de cambios profundos provocados por la quimioterapia / Living with Cancer: An Experience of Profound Changes Brought on by Chemotherapy / Viver com câncer: uma experiência de mudanças profundas provocadas pela quimioterapia

Objetivo: develar las experiencias de mujeres chilenas con cáncer en tratamiento con quimioterapia. Materiales y método: estudio de investigación cualitativa fenomenológica según el pensamiento filosófico de Martín Heidegger. Se entrevistaron en profundidad a 10 mujeres entre 45 y 64 años, con diferentes diagnósticos de cáncer en tratamiento con quimioterapia. El análisis se realizó basado en el método de Streubert y Carpenter, triangulando con un investigador experto. Resultados: la experiencia de vivir con cáncer y con quimioterapia significa estar "viviendo con un tratamiento que provoca cambios profundos en la vida de las mujeres", siendo esta una categoría comprensiva esencial del estudio que contiene cuatro unidades de significados: 1) cambios en todas las dimensiones del "ser" de las mujeres tanto a nivel corporal como emocional y espiritual; 2) cambios en el "ser-sí-misma": antes y durante la quimioterapia; 3) cambios de "ser" en el mundo; 4) cambios en la familia. Conclusiones: la comprensión en profundidad de lo vivido por las mujeres de este estudio confirma lo publicado en la literatura, y se constituye en un saber comprensivo que puede servir de guía para realizar cuidados de enfermería oncológicos humanos y personalizados basados en las necesidades de cada persona.

Objective: To show the experiences of Chilean women with cancer who are undergoing chemotherapy. Materials and methods: This is a phenomenological qualitative study developed pursuant to the philosophical thinking of Martin Heidegger. In-depth interviews were conducted with 10 women between 45 and 64 years of age who have been diagnosed with different types of cancer and are undergoing chemotherapy. The analysis was based on the Streubert-Carpenter method and triangulated by a practiced researcher. Results: The experience of living with cancer and chemotherapy means "living with a treatment that causes profound changes in women's lives," this being an essential, comprehensive category of the study that contains four units of meaning: 1) changes in all the dimensions of "being" a woman; that is, at the corporal, emotional and spiritual level, 2) changes in "being oneself" before and during chemotherapy, 3) changes to "being" in the world, and 4) changes in the family. Conclusions: An in-depth understanding of the experiences of the women in this study confirms the reports in literature and constitutes a comprehensive body of knowledge that can serve as a guide to humane and tailored cancer nursing care based on each person's needs.

Objetivo: revelar as experiências de mulheres chilenas com câncer em tratamento com quimioterapia. Materiais e método: estudo de pesquisa qualitativa fenomenológica segundo o pensamento filosófico de Martín Heidegger. Entrevistaram-se em profundidade 10 mulheres entre 45 e 64 anos, com diferentes diagnósticos de câncer em tratamento com quimioterapia. A análise foi realizada com base no método de Streubert e Carpenter, e triangulada com um pesquisador especialista. Resultados: a experiência de viver com câncer e com quimioterapia significa estar "vivendo com um tratamento que provoca mudanças profundas na vida das mulheres", e esta é uma categoria compreensiva essencial do estudo que contém quatro unidades de significados: 1) mudanças em todas as dimensões do "ser" das mulheres, tanto corporal quanto emocional e espiritualmente; 2) mudanças no "ser-si-mesma": antes e durante a quimioterapia; 3) mudanças de "ser" no mundo; 4) mudanças na família. Conclusões: a compreensão em profundidade do vivido pelas mulheres deste estudo confirma o publicado na literatura e constitui-se em um saber compreensivo que pode servir de guia para realizar cuidados de enfermagem oncológicos humanos e personalizados baseados nas necessidades de cada pessoa.

Significados de la experiencia de una enfermera con su madre hospitalizada en una unidad intensiva coronaria / Meanings of the experience of a nurse with her mother hospitalized in an intensive coronary unit

El ingreso de un paciente a una Unidad de Cuidados Intensivos (UCI), es un acontecimiento estresante para los miembros de la familia y las experiencias que viven al separarse resultan traumáticas, pero pocas veces son acogidas por los profesionales del staff clínico. Se realizó un estudio de caso para develar la experiencia de una enfermera cuya madre estuvo hospitalizada en una unidad de cuidados intensivos coronaria, para contribuir a generar conocimiento comprensivo en enfermería sobre este fenómeno y aportar a la humanización del cuidado de los familiares. Metodología: Para ello, se aplicó el método de investigación cualitativa de aproximación fenomenológica de Husserl. Se entrevistó en profundidad a una enfermera, quien firmó previamente un consentimiento informado. El proceso de análisis fue realizado basado en Streubert & Carpenter y triangulado con investigadores expertos. Resultados: Se develaron cuatro grandes unidades de significado. La experiencia de tener a su madre hospitalizada en una UCI significa: (1) vivir como un divagar de sentimientos en torno a la muerte, (2) significa, también, una incapacidad de desvincularse del rol de enfermera y tener conciencia de gravedad, (3) significa contar con diferentes apoyos y, por último, significa un (4) cambio de roles al interior de la familia. Conclusión: Se evidencian los aspectos más importantes para realizar intervenciones de cuidados de enfermería personalizados considerando los aspectos emocionales y psicológicos de acuerdo a las singularidades de la enfermera como familiar de paciente hospitalizado en una unidad de paciente crítico.

A patient admitted in an Intensive Care Unit (ICU) is a stressful event for the members of a family, the experiencesbe separated can be traumatic, but rarely are understood by clinical staff. A case study was conducted to reveal the experience of a nurse whose mother was in a Coronary Intensive Care Unit in order to contribute to the construction of comprehensive knowledge in Nursing about this phenomenon, and make a contribution in the humanization of caring for family. Methodology: was applied a qualitative investigation method of approximation phenomenological from Husserl In depth was interviewed a nurse who previously signed an informed consent. The process of analysis was performed based on Streubert & Carpenter and triangulated with expert researchers. Results: Four major units of meaning were unveiled. The experience of having her mother hospitalized in an ICU means: (1) live as a ramble from feelings about death, (2) also means an inability to disengage from the role of nurse and be aware of gravity, (3) means having diff erent supports and fi nally, means a (4) Change of roles within the family. Conclusion: The results indicated the most important interventions of nursing care considering the custom and human emotional and psychological aspects according to the singularities of the nurse as a relative of an ill patient in a critical inpatient unit.